Yeah, ok- not trying to be a dork, but that is pretty much all I can do. . .or is it? For those of you who know me, and even those of you who e mail me wondering what is my deal. . .surely you must know that I have more to do with this, right? :)
Here is the thing, so many social changes have come with those advocating change not sure they could even change anything, in this case, I know I can, because things HAVE changed. I have children who had hundreds of dollars worth of shots, and thousands of dollars worth of medicine, and even more in uncovered doctor's expenses because of the short sightedness of the insurance industry. . .and I can use that to my advantage, for the cause of helping kids not as blessed as mine, a total bitch for a mom who would NOT sit still and "wait and see", and for those kids who cannot afford to wait. . .so, I am taking this torch up. . .stay tuned!
Tuesday, October 30, 2007
Sunday, October 28, 2007
Stats is done. . .for now
and other than an alarming lack of association between my variables. . .all is well.
So, why am I grateful to the Wiggles? Long before the dreaded autism word was a part of our lives, I already knew something was wrong with the way Precious was acting. He was not speaking at all by the time he was 2, Cocoa was born, and the doctor thought he was just mad- but I knew. So, we finally figured out what was wrong-autism, and the thought of what was going to be, what was, and of course, what was not made life a pretty tough thing for awhile.
Precious was NEVER a sit and rock kid- he was a jump off the bed across the room kid, so days were exhausting, and stressful. Plus, as he grew, it became clear to him that WE did not get him, and we did not help him when he needed it, because we did not understand what he needed. . .so we, as a collective, were pretty stressed.
One day, in utter desperation, I turned on the TV, determined to sit for 5 minutes and mope- and Playhouse Disney was running a show I had never heard of- 4 adult men in pastel shirts(see above) dancing and singing about kids stuff (note to self, Google these freaks AT ONCE) I was about to turn it off. . .and Precious did the strangest thing- he started to dance and sing. . .SING the song after a few minutes of listening. . .I was horrified and ecstatic. . .most in awe of my child, in this moment, actually comprehending, and listening! Wow, indeed.
So, these years later, and he is still a big fan, mostly of Captain Feathersword. . .but the group as a whole continues to capture his full attention.
So, I am going to be FOREVER in debt to 4 Aussie men who defied gender stereotypes and made me aware of my son's potential. . .found out later that all 4 have education degrees and that many other developmentally delayed children have had a lot of progress using their music.
G'Day!!
So, why am I grateful to the Wiggles? Long before the dreaded autism word was a part of our lives, I already knew something was wrong with the way Precious was acting. He was not speaking at all by the time he was 2, Cocoa was born, and the doctor thought he was just mad- but I knew. So, we finally figured out what was wrong-autism, and the thought of what was going to be, what was, and of course, what was not made life a pretty tough thing for awhile.
Precious was NEVER a sit and rock kid- he was a jump off the bed across the room kid, so days were exhausting, and stressful. Plus, as he grew, it became clear to him that WE did not get him, and we did not help him when he needed it, because we did not understand what he needed. . .so we, as a collective, were pretty stressed.
One day, in utter desperation, I turned on the TV, determined to sit for 5 minutes and mope- and Playhouse Disney was running a show I had never heard of- 4 adult men in pastel shirts(see above) dancing and singing about kids stuff (note to self, Google these freaks AT ONCE) I was about to turn it off. . .and Precious did the strangest thing- he started to dance and sing. . .SING the song after a few minutes of listening. . .I was horrified and ecstatic. . .most in awe of my child, in this moment, actually comprehending, and listening! Wow, indeed.
So, these years later, and he is still a big fan, mostly of Captain Feathersword. . .but the group as a whole continues to capture his full attention.
So, I am going to be FOREVER in debt to 4 Aussie men who defied gender stereotypes and made me aware of my son's potential. . .found out later that all 4 have education degrees and that many other developmentally delayed children have had a lot of progress using their music.
G'Day!!
Get ready to . . . . .WIGGLE!
Precious "getting down" with The Wiggles
Meeting Captain Feathersword!!!
Bluntly put, I have never been a big "kid specific" entertainment fan. Even when I was one, which I am beginning to doubt I ever was if today's childhood experience norm set to to be used to measure such things, I did not like costumed, made up characters, and CERTAINLY DID NOT WANT TO MEET ANY OF THEM. I would be such a freak today- even Butter, Mr. Practical, was thrilled when Optimus Prime phoned the house last week (I never said I would not arrange such kid activities for my babies) I never went to events like this as a child- no money and often they were held on Saturdays, which would leave me out.
So, I myself have never seen The Wiggles live- but Precious saw them just after bing dxed, and STILL had a great time. . .this summer we went to Six Flags, and he LOVED the "fake" show(see above)and he. . .sat for over 2 HOURS between shows so he could watch the show again!
Ok, so now you know my deep dark secret. . .I have no real appreciation for this kind of "entertainment". . .bad bad BAD Rainmom. I do have a reason why I will always be grateful to these people, this group- I will tell THAT story later. . .
M out
Thursday, October 25, 2007
AN INEXCUSABLE OMISSION!
Introducing Kenzie Michele
Born August 31, 2007
My brother and his wife and 3 daughters are all well.
I am now a foremother. . .tradition and superstition be darned!!!!
A Letter to the Editor
Submitted this morning. . .The Wisconsin budget. Sigh, what a mess. Buried under the new taxes and the perks for the usual suspects, the absence of the provision that would have required insurance companies to pay for therapy for autistic children like mine was not really discernable. However, families like mine felt the loss deeply.One of the first things that echos in the mind of parents as they struggle with the initial diagnosis of autism is the hope that therapy provides. The hope attached to the intensive expensive therapy required cannot be underestimated. This treatment is one large piece of solving the puzzle, and while my son is one of the fortunate ones, it is the shoving aside of the many parents and children who are in desperate need for this help, and the ones who have yet to be diagnosised that saddens me. This jettisoned provision was important, and it would have helped many parents in their struggle to help their children deal with autism.
Tuesday, October 23, 2007
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